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  • +41 (0)21 320 77 22
  • info@nonoma.org

News of the field

16-11-stop-noma

STOP NOMA Alert

To all donors and friends who are sensitive to the cause of noma: We would like to inform you that the association STOP NOMA, headed by Mr Dieumo (www.stopnoma.org), is not part of the International Federation for the fight against Noma and is not known to any of the members of this Federation working in the field. We invite you to read this report from the non-profit association Give Wisely following their meeting with Mr Dieumo, (give-wisely-asbl-conclusions-contact-mr-dieumo-30-08-2016-stop-noma) as well as this letter addressed to the same gentleman by the Winds of Hope Foundation (lettre-woh-envoyee-a-mr-dieumo). Please be vigilant, because there are serious doubts about the use of the funds collected by this association. Some texts and photos on their website have also been taken without authorization from the Winds of Hope Foundation’s site and repeated requests to remove them ignored.

2016-11-news-article-msf-gesnoma-woh-et-sentinelles

Article on noma

Doctors without borders (MSF), Sentinelles, GESNOMA and Winds of Hope have joined forces to write an article in order to give more visibility to the problem of noma and to disseminate the noma posters among the medical and paramedical health workers specialised in the fields of nutrition or food security. This is a great example of synergy enabling to address the root causes of noma, malnutrition being its cradle. Discover the article “Noma, a neglected disease!” published in ENN’s technical publication on nutrition in emergencies called Field exchange  (publication n° 53  – nov 16).

news-2016-09-ag-finn-16

General Assembly & Roundtable 16

The 14th General Assembly and 15th Round Table of the International NoNoma Federation, organized, funded and chaired by Winds of Hope, were held in Ferney-Voltaire on 23 and 24 September. Winds of Hope President, Bertrand Piccard, who had recently returned from his round-the-world flight in Solar Impulse, reminded everyone how closely energy and food problems are correlated, thereby establishing a direct link between the objectives pursued by the Solar Impulse Foundation and those of Winds of Hope. Two new associations, Avec Mali/Jura and New Face had joined the Federation, bringing the total number of members to 34. The highlights of the meeting were: the presentation of the Terre des Hommes mobile health kit, designed to improve the management of noma in the field; Médecins Sans Frontières’ review of their experience and perspectives for the fight against noma; the current situation in Niger, described by the field manager for Sentinelles Niger; the laying of the first bricks of the new maternity hospital on the edge of the Sahel; and the key role played by traditional healers in the management of noma in Mali, as highlighted by Dr. Daou’s thesis.

Our website in brief

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The disease

Noma is a virulent gangrene that develops in the mouth. It starts with a benign lesion but ends up by devastating the face in an atrocious way.. It mainly affects children aged 2 to 6 years. In the absence of treatment, 80% -90% of affected children die. Those that survive will never be able to speak, eat or breathe normally.

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What we do

The activities of the Federation’s members are directly linked in different ways with the disease of noma: prevention, detection, treatment, social and financial support, research, raising awareness in the international community, advocacy. To date, they are conducted mainly in Africa, in the following countries: Benin, Burkina Faso, Cameroon, Ethiopia, Mali, Niger, Nigeria, Congo (DRC), Senegal and Togo.

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Members

The Federation has some thirty members. They work together to develop synergies, locally and internationally, and all observe a common ethical code. Most of these NGOs are based in Switzerland and France, but also there are some in Austria, Germany, Belgium, Great Britain, the United States, Burkina Faso, Ethiopia, Mali, Niger and DR Congo.

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